You raise your ugly head

You first raised your ugly head on Friday 4 May, 2018. You came as a complete shock, out of nowhere, with no warning, and to this day too often you continue to raise your ugly head.

At home, at school, on holiday, in the car, in the tent, in bed, sitting at the table, sitting by the window, watching tv, playing with your cars, sat on the toilet, on top of the fort, when we climb rocks, at restaurants; you raise your ugly head.

Giving medicine every morning and every evening is a constant reminder that you are there. The medicine tries to keep you at bay yet you continue to raise your ugly head.

You can last a matter of seconds or what feels like long minutes and you change my boy. You take away his character, his personality, his smile, the spark in his eyes, you drain the colour from his face, take away his ability to respond, his ability to control his bladder, you make his heart beat so fast, you make him hold on to my hand so tightly. You change my gorgeous boy and you exhaust him when you raise your ugly head.

When will you stop? Will you ever go away? Five years and you continue to raise your ugly head anywhere and at anytime. You catch us of guard, you make my heart sink and you exhaust my boy.

Epilepsy you suck.

Epilepsy facts

Epilepsy is a neurological condition which means it affects the brain. It is also a physical condition because the body is affected when someone has a seizure.

Around 79 people are diagnosed with Epilepsy every day in the UK.

Over 60 different types of seizures have been identified and not all seizures include convulsions or jerky body movements.

Epilepsy is usually only diagnosed after the person has more than one seizure.

Most people with Epilepsy do not have seizures triggered by flashing lights.

How to help someone having a seizure...

Keep the person SAFE at all times.

STAY with the person until the seizure is completely over and they are fully recovered.  

TIME the seizure.

DON'T try to hold them down or stop the movements

CALL an ambulance if the person is struggling to breathe or if the seizure is lasting more than a few minutes.

epilepsysociety.org.uk